It has been almost a week since Peter's diagnosis. In some ways, things are still the same and in some ways they are very different. For starters, he is not allowed to work or drive (I still argue that Peter driving during a seizure would still be safer than my driving at any given time). We have had some good days (today) and some really bad days (yesterday). Overall we are just trying to adjust to life with cancer and accepting the fact that our life prior to last Saturday no longer exists. We are now looking at surgery, medications, possible chemo and radiation, check-ups and MRI's. We need to look into the details of our will and life insurance, among other things we never thought we'd have to do at this age.
After hearing the story of how this all came to be, the next question everyone asks is "How are you doing?" or "What can I do for you?" Well, to be honest, we're not doing great but we're doing ok. Ryan underwent 3 heart surgeries before the age of 5, so we're at least somewhat experienced in this area. We don't relish the opportunity to do this again, but we feel able to switch back into that mode and handle this a second time. Family and friends have surrounded us this past week to make us feel loved and cared for. We've had multiple offers to cover childcare, meals, and household tasks.
Overall, if you want to help us, there are several things you can do:
Pray for us -- We're big believers in miracles and we've seen them before.
Let us know you're thinking of us -- Seriously, all the texts, phone calls and Facebook messages have made us feel like the cool kids in school, which is actually kind of the opposite of what we really were. ;)
Make us laugh -- Cancer sucks, but laughter helps. We've done our best to make light of the situation whenever possible. Don't be afraid of offending us -- if there's an inappropriate cancer joke, we've probably already made it.
Don't treat us any differently than you normally would -- Pete doesn't feel sick and I'm not moping around. We appreciate the sympathy, but please don't feel sorry for us.
Trust us to make the decisions we think are best -- We've already had several people call us with suggestions, advice, names of doctors, diets we should try, questions we should ask, etc. While we certainly appreciate everyone's concern, please understand that with cancer, every case is different. The decisions we make with our doctor are based on the specific details of Peter's case. Nobody wants to beat this more than we do, so please trust that every decision is made with a great deal of thought and consideration.
All in all, we'd like to thank everyone who has been there for us this past week. We have truly been overwhelmed by your love and support! I will do my best to keep this blog updated in between doctor appointments, schoolwork and taking care of the family. We go for a second opinion at Vanderbilt tomorrow, so I hope to have some news for you then.
And here you have it! Proof that Peter not only has a tumor, but also a brain! Which is more shocking? You decide. (What did I tell you about the jokes?!) |
Praying for you all.
ReplyDeleteJessica and Peter, Just want you to know that we are thinking of you today as you go for your second opinion. Will be checking your blog for any updates. Don't know if you are FB friends with my mom (Lois) but she had lung cancer 5 years ago. She came across this site called "Inspire" she calls it her "Inspire Site", but anyways it is a great support system. You can meet other people that are going through all different types of cancer. It is an excellent source of information, and to talk first hand with cancer patients and family that have experienced the things that you are going through. Maybe you would want to check it out. So take care and we love you guys. Love, Aunt Sue and Uncle Dennis
ReplyDeleteWe are here for you! Looking forward to seeing you and supporting all of you though the surgery. Get ready for LOTS more attention, Mr. and Mrs. Popularity! And Pete, I think your brain is very big!
ReplyDeleteJessica and Peter, you guys rock. Just wanted to say so. :)
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